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Pristine Organics Pvt Ltd, the Bengaluru based food technology & Nutraceutical Company, pioneering in Food Research & Development, commemorated the World Rare Disease Day by holding a one of its kind awareness program for “Inborn Errors of Metabolism in India”. This program was aimed at spreading awareness of the management of Inborn Errors of Metabolism (IEM) through nutritional supplementation and a natural diet.
India’s Food Safety & Standards Authority of India (FSSAI) has entered into a partnership with professional organizations, healthcare professionals and corporate to address the challenge that plagues our society. Pristine Organics caters to more than 500 IEM patients. India’s Food Safety & Standards Authority of India (FSSAI) has selected five companies to provide specialized diet, of which Pristine is the only Indian company, to address this IEM issue.
Speaking on this occasion, Mr. KC Raghu, Founder & MD at Pristine Organics, said “It is indeed fulfilling to see how need based innovative nutrition products of Pristine is helping the most vulnerable and neglected segment in healthcare. In fact, it is quite heartening that we are truly pioneering and only Indian company to make products for this segment”.
Inborn Errors of Metabolism is a rare genetic (inherited or congenital) disorder, in which the human body cannot properly turn the food into energy for the body consumption. A special IEM Diet is required for these children to be able to process the food, and get the required nutrition for growth at the same time. The treatment process in the initial years of IEM discovery was the restriction of dietary proteins which resulted in malnourished children with further complications. IEM Diets can be formulated for specific condition. As IEM diets help in management of the condition and increase the lifespan of the child, recent technological advancements such as enzyme replacement, gene therapy, and organ transplantation have opened doors for treatment of IEM.